The Chonkerton

She spent decades alone with a rare genetic condition – now she's building a community for others like her

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Yessika Sutawijaya spent decades with neurofibromatosis, a rare genetic condition, before meeting another person living with the disorder. Per Channel NewsAsia, the 45-year-old was inspired to co-found a support group—ensuring others can find the community she never had during those isolated years.

Source: https://www.channelnewsasia.com/women/neurofibromatosis-s...

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